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Josie's Journey
Through her mama's voice, along the road to find a cure for FOXG1 syndrome
Josie Graduates from the Hagedorn Little Village School!
Movin' on up! Josie graduated from elementary school today. It might have been the cutest graduation ceremony in the history of...
Nicole
Jun 23, 20233 min read
"Joyfully Josie" Teaches About Disabilities - CHildren's Book Now Available!
I have some pretty big news. I can add 'children's book writer' to my LinkedIn profile. Yup, I wrote a children’s book! Allow me to...
Nicole
May 23, 20234 min read
Honk For a Cure: Goose (the Band) FOXG1 Fundraiser at the Capitol Theater
The Power of "Yes" During the thick of the pandemic in January of 2021, my then 13 year-old son Tanner had a Zoom guitar lesson with Rick...
Nicole
Mar 7, 20234 min read
One Thanksgiving Josie Will "Say" Thank You for a FOXG1 Cure
Josie was born the day before Thanksgiving 11 years ago and truly defined the meaning of giving thanks. Allow me to rattle the reasons...
Nicole
Nov 23, 20223 min read
Day 11 in NYU Langone's Hassenfeld Pediatric Intensive Care Unit
The Air That I Breathe... It feels like I'm living in a Netflix series called The PICU. The past few days - or episodes- have been quite...
Nicole
Feb 21, 20223 min read
Day 7 in NYU Hassenfeld Pediatric Intensive Care Unit
Just Relax, You're Doing Fine.... Move over sepsis and pneumonia, seizures are stealing the spotlight today. Today started out with a...
Nicole
Feb 17, 20225 min read
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